Organization / Program Name(s) Located In Description Office phone E-mail Website Eligibility
Acouphènes QuébecMontréal (Ville) More informations available in the French version 514-276-7772 info@acouphenesquebec.org www.acouphenesquebec.org  
Acoustic Neuroma Association of CanadaOntario More informations available in the French version 416-546-6426 director@anac.ca www.anac.ca  
Amyotrophic lateral sclerosis Society of QuébecMont-Royal To provide support and referrals for people living with ALS and their loved ones * to fund research * to raise awareness of this disease among the general public, government officials and medical and ... 514-725-2653 info@sla-quebec.ca sla-quebec.ca  
Association de la neurofibromatose du QuébecMontréal (Ville) More informations available in the French version 514-385-6702 anfq@anfq.org www.anfq.ca  
Association de spina-bifida et d'hydrocéphalie du QuébecMontréal (Ville) More informations available in the French version 514-340-9019 info@spina.qc.ca www.spina.qc.ca  
Association des accidentés cérébro-vasculaires et traumatisés crâniens de l'Estrie2-1 Hôtel-Dieu (District) More information available on the French version 819-821-2799 secretariat@acte-estrie.org acte-estrie.org Ages: 18 year(s) and up
Association des grands brûlés FLAM6-2- Maizerets (Quartier) Group of burn victims and their loved ones promoting help, mutual aid and support for personal and social rehabilitation * support, orientation and referral services for its clientele from all over ea ... 418-527-7004 info@grands-brules.ca www.grands-brules.ca People with burn injuries and their families
Association des implantés cochléaires du Québec2-1- Neufchâtel Est-Lebourgneuf (Quartier) More informations available in the French version 418-623-7417 aicq@bellnet.ca https://aicq-cochleaire.org/  
Association des patients immunodéficients du QuébecSaint-Jean-sur-Richelieu More informations available in the French version   info@apiq.info www.cipo-apiq.ca  
Association EmmanuelLongueuil Grouping of families and people sympathetic to the adoption of children with disabilities or special needs * collaboration with social services * advice to adopters and approved organizations * suppor ... 819-314-3444 info@emmanuel.qc.ca emmanuel.qc.ca/en  
Association Prader-Willi QuébecLaurentides - Région 15 More informations available in the French version 450-858-4033 lafleur_bleue@hotmail.com    
Association québécoise de la dégénérescence maculaireMontréal (Ville) More informations available in the French version 514-937-1111 info@aqdm.org www.aqdm.org Ages: 50 year(s) and up
Ataxia CanadaMontréal (Ville) Association for people suffering from familial ataxias, parents, friends and those working with the disease, either as immediate caregivers or as health professionals and researchers * Support program ... 514-321-8684 ataxie@lacaf.org www.lacaf.org  
Canadian Hemophilia SocietyMontréal (Ville) Advocate to improve the health and quality of life of all people in Canada with inherited bleeding disorders until cures are universally available 514-848-0503 chs@hemophilia.ca www.hemophilia.ca  
Canadian Hemophilia Society - Québec ChapterMontréal (Ville) Improving the health and quality of life of people suffering from an inherited bleeding disorder. * educational material * information * conference * psychosocial support: family weekend, summer camp ... 514-848-0666 info@schq.org www.hemophilia.ca  
Center and Association for People living with Hepatitis CMontréal (Ville) Answers to questions about human immunodeficiency virus (HIV) and hepatitis C, hepatitis C virus (HCV) and nutrition, HCV and pregnancy, HCV and sexuality, screening, treatment, chronic hepatitis B. * ... 514-521-0444 info@capahc.com www.capahc.com Ages: 18 year(s) and up
Centre des ROSÉS de l'Abitibi-TémiscamingueRouyn-Noranda More information in the French version 819-764-9111 info@centredesroses.org centredesroses.org  
Childhood Cancer Canada FoundationToronto More informations available in the French version 416-489-6440 info@childhoodcancer.ca childhoodcancer.ca Ages: 18 year(s) and under
CNIBOntario Enhance independence for Canadians who are blind or partially sighted and promote vision health 416-486-2500 info@cnib.ca www.cnib.ca All ages
Diabétiques de Baie-Comeau (Les)Baie-Comeau More information available on the French version 418-297-4366 diabetebc@hotmail.ca www.diabete.qc.ca  
Diabétiques de Sept-îles (Les)Sept-Îles More information available on the French version 418-965-0364 diabete.sept-iles@toutlook.com repertoire.lappui.org/fr/organisation/les-diabetiques-de-sept-iles  
Fondation québécoise du cancer, Centre régional de Québec6-2- Maizerets (Quartier) More informations available in the French version 418-657-5334 cancerquebec.que@fqc.qc.ca cancerquebec.ca Ages: 18 year(s) and up
Gastrointestinal SocietyBritish Columbia The Gastrointestinal Society is committed to improving the lives of people with gastrointestinal and liver conditions, supporting research, advocating for appropriate patient access to healthcare, and ... 604-873-4876 info@badgut.org www.badgut.org  
Gastrointestinal Society, Division du QuébecMont-Royal Providing trusted, evidence-based information on all areas of the gastrointestinal tract * improving the lives of people with GI and liver conditions * supporting research * advocating for appropriate ... English 866-600-4875 
French 855-600-4875		 info@badgut.org www.badgut.org  
Gender Creative Kids CanadaMontréal (Ville) Supporting and affirming gender creative kids within their families, schools and communities * Service Providers https://gendercreativekids.com/services * Resource Library https://gendercreativekids.c ...   info@contactgckc.com gendercreativekids.com Ages: 4 year(s) - 18 year(s) 
 
trans and gender creative youth
GIST Sarcoma Life Raft Group CanadaOntario A patient support organization for people with a rare disease or a gastrointestinal stromal tumour (GIST) and their families and friends Canadian GIST specialists http://www.liferaftgroup.ca/pros.html ...   info@liferaftgroup.ca www.liferaftgroup.ca  
Groupe aide aux enfants tyrosinémiques du QuébecSaguenay-Lac-Saint-Jean - Région 02 More information available in the French version 418-481-1671 info@gaetq.org gaetq.org  
Guillain-Barre Syndrome Foundation of CanadaOntario Improves the quality of life for individuals and families affected with GBS, CIDP, MMN, and variants Canada English 647-560-6842 info@gbscidp.ca www.gbscidp.ca  
Leucan, Région de Québec3-3- Saint-Louis (Quartier) More informations available in the French version 418-654-2136 quebec@leucan.qc.ca www.leucan.qc.ca/en Ages: 18 year(s) and under
Lymphoma CanadaOntario Empower lymphoma patients and the lymphoma community through education, support and research   info@lymphoma.ca www.lymphoma.ca  
Mouvement d'information et d'entraide dans la lutte contre le VIH-sida à Québec1-4- Montcalm (Quartier) More informations available in the French version 418-649-1720 
Ligne sida-aide 418-649-0788		 miels@miels.org www.miels.org  
Multiple Sclerosis Society of CanadaOntario More informations available in the French version 416-922-6065 msnavigators@mscanada.ca spcanada.ca  
Muscular Dystrophy CanadaOntario More informations available in the French version   info@muscle.ca www.muscle.ca  
Muscular Dystrophy Canada, Division du QuébecMontréal (Ville) More information available on the French version   infoquebec@muscle.ca www.muscle.ca  
Osteoporosis CanadaOntario More informations available in the French version Osteoporosis Canada provides medically accurate information to patients, healthcare providers and the public. Services include educational programming ... 416-696-2663 info@osteoporosis.ca www.osteoporosis.ca  
Ovarian Cancer Canada, Bureau régional du QuébecMontréal (Ville) Support women affected by ovarian cancer and their families * Raise awareness among the public and health care professionals * Fund research * Information and reference service * "By Your Side" for wo ... 514-369-2972 info@ovariancanada.org www.ovariancanada.org/?lang=en-CA  
Polio Québec AssociationCôte-des-Neiges - Notre-Dame-de-Grâce (Arrondissement) Polio Quebec aims to : * Be the best possible source of help in Quebec for people affected by polio and the post-polio syndrome (PPS) * Help and advocate on behalf of these people * Foster public and ... 514-489-1143 association@polioquebec.org www.polioquebec.org People who had polio or who suffer from post-polio syndrome (PPS) * People who have a relative or a friend affected by polio or its after-effects * People who want information on polio and PPS * People who wish to contribute to help and defend people affected by polio and PPS
Québec Breast Cancer FoundationMontréal (Ville) Funding for innovative breast cancer research * Promoting breast health through education and awareness * Conferences in schools and workplaces * Development and distribution of educational materials ... 514-871-1717 soutien@rubanrose.org www.rubanrose.org  
Réplique Estrie (La)4-3 Lac-des-Nations (District) More information available on the French version 819-348-2670 administration@repliqueestrie.org repliqueestrie.org  
Réseau de la santé sexuelle des sourds du QuébecMontréal (Ville) More informations available in the French version   info@rsssq.org www.rsssq.org  
Scleroderma QuebecMontérégie - Région 16 More informations available in the French version 1-844-990-6789 info@sclerodermie.ca en.sclerodermie.ca Ages: 18 year(s) and up
Sjögren's Syndrome AssociationBeloeil * To provide assistance to people with Sjögren's Syndrome * To inform people at large about the syndrome * To encourage medical research in order to screen, treat and cure patients with Sjögren's Cont ... 514-934-3666 sjogrenquebec@gmail.com www.sjogrens.ca  
Société Alzheimer Abitibi-TémiscamingueRouyn-Noranda More information available on the French version 819-764-3554 info@alzheimerAT.org alzheimer.ca  
Société Alzheimer Abitibi-Témiscamingue, Point de service MRC d'AbitibiAmos More information available on the French version 819-727-1221 abitibi@alzheimerAT.org alzheimer.ca  
Société Alzheimer Abitibi-Témiscamingue, Point de service TémiscamingueVille-Marie More information available on the French version 819-622-1515 temiscamingue@alzheimerAT.org alzheimer.ca  
Société Alzheimer Chaudière-Appalaches, Centre de soutien Alzheimer de LévisSaint-Jean-Chrysostome (Quartier) More informations available in the French version 418-837-6131 poste 2 alzheimercentrelevis@alzheimerchap.qc.ca www.alzheimerchap.qc.ca  
Société Alzheimer Côte-NordSept-Îles More informations available on the French version 418-968-4673 info@alzheimercn.ca www.societealzheimercotenord.com  
Société Alzheimer Côte-Nord, Point de service de Baie-ComeauBaie-Comeau More information available on the French version 418-589-0567 * 418-968-4673 info@alzheimercn.ca www.societealzheimercotenord.com  
Société Alzheimer de l'Estrie4-3 Lac-des-Nations (District) More information available in the French version 819-821-5127 info@alzheimerestrie.com www.alzheimerestrie.com  
Société Alzheimer de Québec3-1- Sillery (Quartier) More informations available in the French version 418-527-4294 info@societealzheimerdequebec.com www.societealzheimerdequebec.com  
Société Huntington du QuébecMontréal (Ville) Enhancing the quality of life for individuals affected by Huntington's Disease and their families * Contributing to research for new treatments leading to a cure * Consultation for affected individual ... Head office 514-282-4272 shq@huntingtonqc.org www.huntingtonqc.org Individuals affected by Huntington's Disease, their families, and their caregivers * At-risk individuals * Healthcare professionals
TDA/H Mauricie Centre-du-QuébecDrummondville More information available on the French version 819-475-6384 info@tdahmcq.ca www.tdahmcq.ca Ages: 18 year(s) and up 
 
Adultes ayant un trouble du déficit de l'attention avec ou sans hyperactivité (TDA/H) et leur entourage